Richard Engel announced  that his son Henry, has died.

Richard Engel says his 6-year-old son, Henry, has died

a genetic brain disorder without a treatment or cure.

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Henry Born on Sept. 29, 2015, slow to reach certain developmental as an infant.

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MECP2 mutations cause Rett syndrome, a disorder that

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typically affects girls after their first birthday,robbing them of learned skills

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Henry was special in so many ways. His loving and endearing smile,

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the way he connected with his eyes, stole my heart from the time I met him

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His condition progressed and he’s developed dystonia:

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uncontrolled shaking/ stiffness. He was in the hospital for 6 weeks

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but is now home and getting love from brother Theo

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